Let’s see…Sunday was an attempt to get back to our normal lives. Unfortunately, Noah’s count was down, so he and Crystal had to stay home from church. I know that everyone there would like to see them, but it just didn’t work out this weekend. Dillon and I did go to church, however. It was great. Everyone was happy to see us. Plus, it was back to a normal routine for Dillon.
In spite of everything, Noah had a really good day on Sunday. I don’t think he got sick at all. That was definitely a plus. He seems to be getting back to the boy that he was before all of this started. He gets tired more often and is a little more tentative than before, but all in all he’s getting back to normal. That brings up a hard point…how do you discipline a child going through this? I don’t want to be too harsh, but then again, I don’t want to just let him get away with anything. It’s a pretty difficult balance.
I went back to work yesterday. Let’s just say I had mixed emotions about returning. But it was really a great experience. Again, the outpouring of support has been amazing. I could never say thank you enough to everyone. A couple of people got together and got us a new vacuum cleaner. It’s pretty awesome. Some other folks got us ‘dinner’ for last night…so much food that I could barely get it home. We ate really well last night. I know that I am blessed to have a job in which there are so many people who are so willing to help us out. So willing, in fact, that they refuse to ask me if I need anything. They just do stuff for us, knowing that I’d never ask because of my pride. I know that there are others out there who don’t have this level of support, and that’s harsh. I wish everyone could work with people as great as the ones I work with.
Noah went to the doctor yesterday to get his blood counts. He was up to 11,000, which is a 9,000 point jump from when we went home. The Neupogen shots that the doctors have had us giving seem to have worked. He’s just a little more able to fight off infection now then he was on Friday. That’s always an awesome thing to hear. The genetics people at Norton talked with Crystal about getting some testing done for the FAP that her family has. They said that she can get tested and then Dillon and Noah - as well as our nephew, David - can be tested based on her results. That’s pretty cool science right there. :) It seems that there is a really good chance that at least Noah will have FAP. We are also getting Dillon tested…at least we can know what we’re looking at in the future…
Unfortunately, Noah was sick quite a bit yesterday. Not the whole day…he was playing with Dillon for quite a bit. But he got sick at lunch and at about 10:00. I guess this is just something that we are going to have to learn to deal with. Towels and Febreeze…good investment items.
I guess we learn to take things one day at a time. I know that sounds cliched, but it’s true. If we look too far ahead, it can be pretty scary. We rely on God and those around us to strengthen us and support us. To everyone who has supported us either prayerfully or financially, YOU GUYS ROCK!!!! That’s about the best I can say it right now.
Well, it’s time to get ready for work. Have a blessed day everyone. Thanks to everyone for your continued support and prayer…we are continually strengthened by your concern for us.
God bless,
Doug
Posted in Noah's Progress, chemotherapy | Tags: FAP, Noah, progress
